Papa’s Run 4 Dray

Fighting to eliminate childhood cancer

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Papa’s Run 4 Dray

Our Mission:  Helping doctors diagnose kids with brain tumors and cancer, and to raise funds to support the fight to save the lives of children.  

Our Vision: Eliminate childhood cancer!

Papa's "Run 4 Dray" - is our 2021 campaign to help raise awareness and funds for the fight against kids cancer.  Together we can make a difference for Dray and kids like him!

Let's make a difference!

For nearly two years now, the stress, anguish, and a helplessness have consumed many days, as my three year-old grandson, Drayson (Dray), continues in the fight for his life!

 

In October 2019, Dray was diagnosed with a cancerous brain tumor. He completed a 60-week chemotherapy protocol in December 2020 indicating a stable condition - just in time for celebrating the holidays. Highflying spirits were quickly dashed away in January, when Dray started experiencing extremely painful headaches. Scans revealed new growth and spreading to the cranial nerve endings, the brain stem and spine. Chemo restarted in March.

 

In July, Dray was admitted to St Jude, Memphis, for  a two-year clinical trial. The trial requires chemo twice-a-day for two years, in the morning upon waking up, and just before bedtime.  This is Dray's new battle and my family's new normal. 

Hi there,  my name is Jim Clarahan from Peoria, IL, Dray's proud papa. In the Summer of 2020, I established this charity in honor of my little warrior, Dray, for ongoing awareness building and fund raising benefiting the fight against childhood cancer.  Please checkout the rest of this website for event info and donation opportunities.  

 

Please join our fight!

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You can help

Help Kick Cancer's Butt!

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How you can help!

First, invest a few minutes to learn more about Kids' Cancer Awareness and Pediatric Brain Tumors! Links to  National Brain Tumor Society  and St Jude Childhood Cancer Awareness. 

 

Second, share what you learn with family, friends, and your local healthcare providers.  

 

Third, please join the fight by becoming a sponsor or making a financial donation here Run 4 Dray Donate Now.

  

  • The Draysontate Children’s Cancer Research Fund (DCCRF), is a registered 501(c)(3) organization, (EIN/tax ID number: 85-1513281)  The "Run 4 Dray" and "Ride 4 Dray" are registered DBA's with the State of Illinois

  • Online contributions are preferred and can be made by clicking on the DONATE NOW button 

  • 100% of all proceeds will go to designated beneficiaries - healthcare organizations focused on early diagnosis, innovative research, improved care therapies, and post-cure thrive programs

  • Papa is personally matching $1 for $1 the first $10,000 of donations to the Run 4 Dray 2021 campaign

  • Contributions to the Run 4 Dray campaign are tax-deductible to the extent permitted by law.

  • Drayson, his family, nor any of the officers or directors of the DCCRF receive compensation or directly or indirectly benefit from any of the proceeds raised

  • All costs of the ride have been generously covered by our sponsors

Dray's Unique Story

Not long after Dray’s first birthday, he rapidly lost weight and body mass, showing symptoms of a rare disease called lipodystrophy - with a very low prevalence rate of only 1 in 1 million.  By 18 months, Dray’s BMI score had dropped to below the 15th percentile, and by his second birthday it was below the 3rd percentile. In spite of maintaining a healthy appetite, in twelve short months, Dray’s body horribly melted away before our very eyes!

For nearly seven months, Dray’s local medical team kept running into dead-end after dead-end, searching for a cause and a cure. When nearly all hope was lost, in October 2019, Mayo Clinic’s pediatric endocrinology and oncology teams came to the rescue.  Providence shined as they somehow recalled a seminal research article published in 2015, authored by a team of world renowned lipodystrophy scientists at the UT Southwestern Medical Center.  Their research discovered three other cases where brain tumors were associated with lipodystrophy, and concluded with the strongest recommendation that “young children presenting lipodystrophy, with or without metabolic abnormalities, should prompt investigation for brain tumors”!

An MRI of Dray’s brain revealed a tumor the size of a golf ball, located in the middle of his brain, atop the optical nerve.  Inoperable due to its location. Ugh!  Dray at least had an answer to what he is up against, and it gave his family renewed hope for a treatment that would lead to a cure, and eventually a return to a normal life.

For the next 60 weeks, oncologists from St Jude, Mayo Clinic and OSF HealthCare Children’s Hospital of Illinois collaborated with the greatest of care to administer a weekly chemo therapy protocol that ended in December 2020 - just in time for Christmas! 

 

Highflying spirits were quickly dashed away in January 2021, when Dray started experiencing extremely painful headaches. Scans revealed new growth and spreading to the cranial nerve endings, the brain stem and spine. Chemo restarted in March.

 

In July 2021, Dray was admitted to St Jude, Memphis, for  a two-year clinical trial. The trial requires chemo twice-a-day for two years, in the morning upon waking up, and just before bedtime.  This is Dray's new battle and my family's new normal. 

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The relative survival rates, for children under the age of 9 with brain cancer, are appallingly to low! Given the child has survived from the time of diagnosis, the published survival rates are:  <1 year = 36.2%, 1 year = 54.4%, and 3 years = 78.5%; Dray is currently in the <1 year phase.  These survival rates should be 100%!